How to use this tool:

  • Consider what the goal of your advocacy is, based on the main priorities facing people living with Wilson’s disease in your context; for example, ‘for the needs of people living with Wilson’s disease to be addressed in the national rare disease strategy’
  • Fill out each question of the SMART analysis template with your goal in mind
  • Using the answers in your SMART analysis, write out your new SMART goal in full
  • Develop an action plan that sets out your strategy to achieve your SMART goal.

 

Criteria Questions Answer Example answers
Specific What do we want to accomplish? We would like the needs of people living with Wilson’s disease to be addressed in the national rare disease strategy.
Who will need to be involved?   Policymakers who are responsible for setting and amending rare disease/health policy – for example, members of parliament and their advisers, or government officials in the health department (see Whom can I engage with to drive change?).
What is the reason for the goal?   Increased representation of the needs of people living with Wilson’s disease in national rare disease policy will lead to improvements in access to, and quality of, Wilson’s disease care.
Measurable How do you know when the goal is achieved?   When the challenges faced by people living with Wilson’s disease are highlighted as issues that need to be addressed in the national rare disease strategy.
How can it be measured?   When a challenge that is relevant to the needs of people living with Wilson’s disease is addressed in the national rare disease strategy (e.g. delays in diagnosis, inadequate data collection, treatment non-adherence), that will be considered a measure of the goal being achieved.
Achievable How will the goal be accomplished?   Through engagement with policymakers with an interest in rare diseases or health more broadly.
What are concrete steps to take to accomplish this?   Secure meetings with relevant policymakers to communicate the challenges faced by people living with Wilson’s disease and the urgent action needed to address these challenges through the national rare disease strategy.
Relevant Is it the best use of your current resources?   Yes, we consider increased representation of the needs of people living with Wilson’s disease in national rare disease policy to be a top priority for our organisation.
Do you have the right resources to start this?   Yes, we have the resources to organise and carry out between five and ten meetings per year with relevant policymakers.
Does this goal align with your mission and vision?   Yes, our overarching mission is ultimately to improve the lives of people living with Wilson’s disease. We believe achieving this goal will contribute to this overarching mission.
Time-bound How long will accomplishing this goal take?

 

  Three years – this is when we expect an update to the national rare disease strategy to be published.

 

The answers given in this template allow you to form more impactful goals that include a clear strategy to achieve them.

  • Possible SMART goal based on the example answers in the tool above: Our goal is for the needs of Wilson’s disease to be adequately addressed in the update to the national rare disease strategy in three years’ time. During this period, we will carry out meetings with relevant policymakers to communicate the need for improvements for people living with Wilson’s disease and convince policymakers of the urgent need for policy change and inclusion of Wilson’s disease in the national rare disease strategy.